Hello All!
Lining up quite nicely with last week's revelation of newly developed methods to detect Sickle Cell Disease (SCD), is the National Heart, Lung, and Blood Institute's release this week of comprehensive, evidence-based guidelines for SCD management. These guidelines are intended to inform care and treatment of the disease over the course of the patients life time. They represent a huge step forward for management of SCD for patients in the United States. Read more here.
Clearly defined and contextually relevant guidelines for SCD treatment remains a challenge to be conquered for clinicians and other healthcare providers on the African continent. As stated by Makani et al.(2013) in a paper assessing these challenges:
"In many African countries there are few or virtually no facilities for appropriate diagnosis and management of SCD. There is limited data about frequency, clinical course, or mortality. Without this information it will be impossible to persuade African governments about the burden of this disease."There continues to be a need for research and collaborations towards getting this infoirmation.
Other developments this week:
Predictive value of pain intensity in the clinical severity of painful crises in children and adolescents with sickle cell diseases
Population and Public Health Implications of Child Health and Reproductive Outcomes Among Carrier Couples of Sickle Cell Disorders in Madhya Pradesh, Central India
Assessment of Ventricular Function in Adults with Sickle Cell Disease: Role of Two-Dimensional Speckle-Tracking Strain
The Prevalence Rate and Neurocognitive Morbidity Associated with Obstructive Sleep Apnea in Children with Sickle Cell Disease
LIN28A Expression Reduces Sickling of Cultured Human Erythrocytes
Distribution of Sickle Cell Disease in Different Communities of Patient Visiting Out Patient Department
Proteinuria in patients with sickle cell disease
Have a great weekend!
The ASN Team
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